|You think about how to feed a kid in a one piece costume....|
|He literally is on the scale every day...we ruined him|
|Give the kid an empty bowl he is happy as can be...add food he is ALL DONE|
|He is showing me how to relax|
|All full of laughter|
On a day to day basis. I tube feed him throughout the day. Day care is trained and they feed him at school. After a hot day on the playground he may get some water in his tube. Usually, we push formula or juice for the calorie needs but water at an amusement park or the zoo is a great help. I always fear when day care calls that it will be "the call" that his tube came out. So far it has never happened (only at home). He wears a onesie under his shirt so that he can't mess with the tube (he has pulled it out before); I am not sure when that will stop so we can try to potty train him. He is a toddler so making him stop playing to be fed is very annoying to him lately. The other kids obviously know he is different but to them it is normal for David as they see him every day. Sometimes it embarrasses Zachary because people stare when I feed David in public. I never mind when people stare, hell it is odd/different/strange/unique. I do answer questions when someone works up the nerve to ask.
|He loves to help|
At the end of the day, this is really all that I currently have to complain about with David. He is healthy in every other way and he is growing and learning. The tube makes it possible to fight infection, get nutrition, grow, learn, play, laugh, etc. Hail to the tube. To everyone walking by he is a little boy that happens to have down syndrome. Sometimes it is like a dirty little secret that catches people off guard when I lift his shirt to feed him (you can see the look on people's faces).
|He is learning to kick a ball and to catch, he throws great|
Thank you for the therapy session.