tag:blogger.com,1999:blog-88040442945188937342024-03-13T09:06:55.504-07:00Team DavidThis blog is mostly about my son David that has down syndrome and eats through a feeding tube.David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.comBlogger76125tag:blogger.com,1999:blog-8804044294518893734.post-60732576190738612512016-02-19T11:18:00.001-07:002016-02-19T11:27:28.129-07:00Photos at the park<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqj0VGaoU0ftk8PtMpi5thaTlhWUDGqBcnPXGd69slJAhiaErTGjk1xEp5d7dDBNZaOIuu0wqMIqLS_WYzJqV0dneyXCdt2FbC1nBpwzjgVphjPMcWpUCrGP6X3gfLj3-pGNISdUHUzQ8/s1600/IMG_20160125_173638.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjqj0VGaoU0ftk8PtMpi5thaTlhWUDGqBcnPXGd69slJAhiaErTGjk1xEp5d7dDBNZaOIuu0wqMIqLS_WYzJqV0dneyXCdt2FbC1nBpwzjgVphjPMcWpUCrGP6X3gfLj3-pGNISdUHUzQ8/s640/IMG_20160125_173638.jpg"> </a> </div><div class="separator" style="clear: both; text-align: center;">The attitude continues...</div><div class="separator" style="clear: both; text-align: center;"><br></div><div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCkUmDvBb6EX-Cd3LeKbpUyOGjGIHXfVJ45iBTK-_yqxjT7t1CGC7sFixRWoe5wFYQyGq_Kv6RsN0tJ-ylZJn4jeKEzCv6dJnHxT-hlYZrCn8hN8dRCUWw43ElsF0pFB-4ZGKnO9QKVJE/s1600/IMG_20160217_172135.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCkUmDvBb6EX-Cd3LeKbpUyOGjGIHXfVJ45iBTK-_yqxjT7t1CGC7sFixRWoe5wFYQyGq_Kv6RsN0tJ-ylZJn4jeKEzCv6dJnHxT-hlYZrCn8hN8dRCUWw43ElsF0pFB-4ZGKnO9QKVJE/s640/IMG_20160217_172135.jpg"> </a> </div><div class="separator" style="clear: both; text-align: center;">David loves going to the local park. Mommy trying to let him walk without handholding. Sometimes mommy has to take off running to catch him before he gets to the street.</div><div class="separator" style="clear: both; text-align: center;"><br></div><div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2HqpgySiFD-kgBBd5D7UplGbrQkej_nvFDJ_YDxk3Iz9hhMGryE6VbbImWoErRxfGzHpmZoaNSRBGNVvh9QOAh5h3cg5Xjr6K8VyRRo73a6Bnr5XcO0QYkYtk-hr-lJtN_oHjTV0HItA/s1600/IMG_20160204_172516.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2HqpgySiFD-kgBBd5D7UplGbrQkej_nvFDJ_YDxk3Iz9hhMGryE6VbbImWoErRxfGzHpmZoaNSRBGNVvh9QOAh5h3cg5Xjr6K8VyRRo73a6Bnr5XcO0QYkYtk-hr-lJtN_oHjTV0HItA/s640/IMG_20160204_172516.jpg"> </a> </div><div class="separator" style="clear: both; text-align: center;">Rock throwing is a favorite activity and can literally last an hour. Putting grass into a grate, same thing (endless fun).</div>David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-27769533583788947602016-01-01T18:37:00.001-07:002016-01-01T18:37:06.365-07:00Photo update<div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghnFniEfYgx3uMmbhKcN0ECJMXEx8FkFIsxTILikHRe-KPW33wdu0EHyV1Y_SL174Z8V3osnJxh6aAh6KWMOVfBEBVfAqY_45wcBoDkTFo7CGLf9N8zdJcbsQ4sn7QoTknz143rFsUwEs/s1600/IMG_20151126_175137.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghnFniEfYgx3uMmbhKcN0ECJMXEx8FkFIsxTILikHRe-KPW33wdu0EHyV1Y_SL174Z8V3osnJxh6aAh6KWMOVfBEBVfAqY_45wcBoDkTFo7CGLf9N8zdJcbsQ4sn7QoTknz143rFsUwEs/s640/IMG_20151126_175137.JPG"> </a> </div><div class="separator" style="clear: both; text-align: center;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEib04JV7-3G6Wo4PXvXojX7U8rmeq7G-WGNUALgyUkyKrPff_LknIWzYN5DitZURVMuLXcSU2-NmxvZGJFyWkfncOB5M0UY4sNGp8wQfAdPh_4Dk5QoWol3dhrjxkXRYpk1ohkB0YSgH38/s1600/IMG_20151114_073627.jpg" imageanchor="1" style="margin-left: 1em; 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David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-51800794975510043732014-12-24T07:58:00.001-07:002014-12-24T07:58:20.642-07:00Holiday Photos The Good and the Bad<div class="separator" style="clear: both; text-align: center;">
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Our best photo of the season and we don't even do Santa at our house</div>
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Zac and mom went hiking and found the decorated tree.....so cool</div>
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They only kind of like each other</div>
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Look where?</div>
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A little stiff and posed</div>
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The real kids</div>
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What is so funny?</div>
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I can focus</div>
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I would like to thank the academy</div>
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Happy Birthday Dear Chanukah....as sung by David</div>
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Zac loves to photo bomb his brother</div>
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This holiday season has been a blast so far. David actually sang Jingle Bells by himself and unprompted. He also really did sing Happy Birthday Dear Chanukah when we lit the candles. And to confuse the poor child more we will be singing Happy Birthday to Poppy as Christmas Eve is his grandfather's birthday. David is starting to open presents this year but still not hugely interested in what he gets. Zac on the other hand is all about the presents and loves everything he gets. Zac and mom have had fun baking cookies, cupcakes, and playing dreidel (a little gambling never hurt anyone). And Steve loves to shop for the boys and really enjoyed shopping for those in need (his favorite holiday tradition by far).<br />
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Merry Christmas, Happy Chanukah, and Happy New Year to all of our friends and family.David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-64676216372700331472014-09-14T15:14:00.001-07:002014-09-14T15:14:26.656-07:00Photo Updates<div class="separator" style="clear: both; text-align: center;">
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Zac first day of 3rd grade. David wouldn't pose for pics that day.</div>
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Brothers practicing push ups</div>
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More cute play time</div>
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Doing yoga poses at Nana's house</div>
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Seconds before David hit Zac</div>
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Another surgery (don't worry just a minor one)</div>
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He is surprisingly strong</div>
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Nana and David</div>
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A very serious David pose</div>
<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-35419321563044847322014-08-28T13:18:00.000-07:002014-08-28T13:18:45.312-07:00Summer Vacation Take 2 - 2014<div class="separator" style="clear: both; text-align: center;">
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Another trip to San Diego, end of summer trip and celebration of our 14th wedding anniversary</div>
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They actually look like they like each other</div>
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David loved the fish acquariums</div>
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Zac loved everything at Seaworld</div>
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Tube feeding in the "wild"</div>
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Best viewing area</div>
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Just a couple of dogs</div>
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We have learned to let people take a family photo</div>
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Welcome to San Diego Zoo</div>
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If you have been to the zoo, you have this picture</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb2RXgNy_Kk3pFGAQJ7XXMV13p05fJylbS4nz2eQznzHKn480ogXUBX9NZ9kGz68V0CzGTPvMPE2FWcBMWhlrvAqyZoVwrx2sjUpnl3QU0GKglC3OMbSE6VNe0BA8oTHMXKqD0N8b5KdM/s1600/san+diego+aug.+2014+133.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb2RXgNy_Kk3pFGAQJ7XXMV13p05fJylbS4nz2eQznzHKn480ogXUBX9NZ9kGz68V0CzGTPvMPE2FWcBMWhlrvAqyZoVwrx2sjUpnl3QU0GKglC3OMbSE6VNe0BA8oTHMXKqD0N8b5KdM/s1600/san+diego+aug.+2014+133.JPG" height="320" width="240" /></a></div>
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And this picture too</div>
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Zac loves all the statues</div>
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David does too</div>
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More tube feeding in public</div>
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More friendly tourist photos</div>
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Day 2 at the San Diego Zoo</div>
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Everyone loved the skyride</div>
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We drove home to a rainbow</div>
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This was the morning we left for San Diego, after hubby cleaned up the tree from the storm the night before</div>
<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-33017168505051599342014-07-26T14:05:00.001-07:002014-07-26T14:05:25.395-07:00Summer 2014<div class="separator" style="clear: both; text-align: center;">
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Adding some quick photos from our recent trip to LA before we head out of town for San Diego. If you live in AZ you go to CA to escape the hot summers.</div>
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David loves the beach. Not the water so much but for sure the sand.</div>
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Zac loves the beach and the water. Too bad he is allergic to sun screen. We try to expose him to sun over time so he won't burn when we spend the whole day outside.</div>
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We were able to make it to the Phoenix Zoo on a muggy overcast morning. David enjoyed hanging out with Smokey.</div>
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He loves horses the best.</div>
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I think Smokey likes him too.</div>
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Hopefully, someday we will move towards riding horses.</div>
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Hanging out at Nana's pool</div>
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My little silly boy with his proud Nana.</div>
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He is very cautious around the water and hangs out on the steps. Today he actual let me take him under water.</div>
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Hopefully, we will have many more photos soon of our next adventure before school starts next month.</div>
<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-62870978038717077922014-04-08T18:13:00.000-07:002014-04-08T18:13:07.609-07:00Really, 4 Years Old<div class="separator" style="clear: both; text-align: center;">
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It's that time of year where I have flashbacks to the beginning of David's life and there are no good memories of the first three weeks he was in this world. It was filled with fear, turmoil, confusion, doubt, and terrible odds of him ever coming home. He went from a 5% chance of survival to a terrible discussion on day 2 of life that we should consider what our wishes would be if he did not survive. They wanted to life flight him by helicopter but they didn't think he could survive the flight. Fortunately we were able to transport by ambulance when he was 2 weeks old, unfortunately he was still on the ventilator. It wasn't until he was 3 weeks old that his platelets started to produce and we could stop transfusing, he was also off the ventilator. It took 3 more weeks until his homecoming when they realized they couldn't wean him from his oxygen or could he bottle feed. By that point bringing him home on machines and monitors was a welcome relief although I was filled with doubt about my capabilities as a nurse/mother. Somehow we survived that first few months until the oxygen wasn't necessary. And we still survive now with a feeding tube as his only way to receive the much needed nutrition to grow and thrive. We also went through open heart surgery when he was 16 months old to repair two holes and suture his mitral valve. There have been minor surgeries along the way for ear tubes, tonsils, adenoids, laryngeal cleft; but we have found so much to celebrate in these past 4 years and are truly thankful for every day we have David in our lives. When he was born so sick my only wish was for him to live long enough so I would have good memories, I wanted to know his laugh and smile and how his voice sounded. My biggest fear was that my memories would only be of a child hooked to machines, filled with fluid, never opening his eyes,</div>
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So this past year he started pre-school learned all of his capital letters and most small letters. He learned numbers 1-10 and is still working on counting (unless you think 1, 2, 3, ten sounds correct). He still has a long way to go with running and jumping and writing and using scissors. </div>
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The part that is hardest to comprehend is that a child can be verbal but can't communicate well. He can parrot most words so you can understand them. He can say 3 to 4 word phrases. He can tell you he wants to go to the zoo or go swing. If he is hurt he cannot tell you what happened. If you ask questions you most likely will get a random word as an answer. If he comes home with a bruise on his forehead he will answer yes to the following questions: did you fall? did someone hit you? did you get bit? did the dog do it? did your teacher do it? All answers are yes. Did you ride the bus today? Answer may be Woody. Did you go to school today? Pedro donkey zoo may be the answer and yest the donkey at the zoo is named Pedro but that does not answer did you go to school today. All in good time this too shall pass.<br />
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Another difficult component of David is that he is apt to escape. Like walk away from you at the park or zoo or crossing a parking lot. He has no comprehension of safety issues and he does not respond to the word stop. Very scary stuff. These are goals we work on throughout the year in school and at home.</div>
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The joys are really too many to name. His laugh, his smile, his hugs, his kisses. His sense of humor. When Zac says who thinks Zac is awesome? David raised his hand and says I do I do. When he says I wuv you it melts your heart. When I don't answer to mom or mommy and he yells Adina through the house.. these are the things that memories are made of.</div>
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When you know his favorite part of the zoo is the petting area and his favorite animals are horses. When you know he like sports and superheros. He has favorite movies (Shrek and Toy Story). He loves nursery rhymes (he can finally say one from beginning to end, Patty Cake). He loves all books and music.</div>
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He is so much more than I ever dreamed of from those first three weeks.</div>
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He is so much more than that prenatal diagnosis at 15 weeks pregnant.</div>
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He is so much more than a boy with down syndrome. He is David and he has fought Goliath more time than I ever dreamed possible. His 4 years on earth has taught me so much. His smile is contagious and his personality sucks in strangers of all sorts. I can't describe my joy to be his mother. Happy 4th birthday (April 16th) to my son we have come a long way together in this world.</div>
<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-76593768331541585912014-02-01T12:55:00.000-07:002014-02-01T12:55:46.357-07:00Feeding Tube Through The Years<div class="separator" style="clear: both; text-align: center;">
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<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-90317416167219002032013-08-19T05:19:00.000-07:002013-08-19T05:19:15.258-07:00David Goes to Hawaii<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPuCHJs70n59NP2xpqucsC8OZx1o4buWoggBzvBLf52EN0Fw203N69OdNyYegVX7BHe49JzmqONpCPWcnDlmuNOeOsqSZnVd7MTxCYdcEI9ljOhrEGL8x_jtmKxEtux-fTByJhyxWllN8/s1600/Oahu+Adina+2013+005.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPuCHJs70n59NP2xpqucsC8OZx1o4buWoggBzvBLf52EN0Fw203N69OdNyYegVX7BHe49JzmqONpCPWcnDlmuNOeOsqSZnVd7MTxCYdcEI9ljOhrEGL8x_jtmKxEtux-fTByJhyxWllN8/s320/Oahu+Adina+2013+005.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">First plane ride</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgidAmr_vCpVj4dvD7tLZREikJjgA6MUlxGIWh45HHUbmhMR_TCQV4UC1uUu3mQtjU4n4LhTuxgRYbIciBVnSZX5kE_gP1Xnu0CorStx9cVg1Qj_Wj-171Ya4c-OM1wII0OmEBPXKIb0q8/s1600/Oahu+Adina+2013+047.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgidAmr_vCpVj4dvD7tLZREikJjgA6MUlxGIWh45HHUbmhMR_TCQV4UC1uUu3mQtjU4n4LhTuxgRYbIciBVnSZX5kE_gP1Xnu0CorStx9cVg1Qj_Wj-171Ya4c-OM1wII0OmEBPXKIb0q8/s320/Oahu+Adina+2013+047.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Over tired silly</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioJTE30ypYLFxYA4Wj7MhKuElDxKmwcMYzYNuOqeRhz9Cy-YfIVsTIM2gYHZ9aojhePm-pmOovk9CdvrnyoaVhdTh2xJv_2Lwz4Nnq8ow-L5W9YohvHTfSHDMQIQBMtpj8oROIHWGl7Yc/s1600/Oahu+Adina+2013+055.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioJTE30ypYLFxYA4Wj7MhKuElDxKmwcMYzYNuOqeRhz9Cy-YfIVsTIM2gYHZ9aojhePm-pmOovk9CdvrnyoaVhdTh2xJv_2Lwz4Nnq8ow-L5W9YohvHTfSHDMQIQBMtpj8oROIHWGl7Yc/s320/Oahu+Adina+2013+055.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Turtle on the beach </td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1amBShQE9l57zYYOtz0TmLnsQjao2e2LiaFiBW1QJWJN8u9UST24SkNrfkuyDD4MxoflyON7GyFp6-Iz7Cvb6EFNeD5-NfIxwgAfR5Sic2IRCJD6nOl7qnvHExFUkEOY3CXPMoMDzCfc/s1600/Oahu+Adina+2013+057.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg1amBShQE9l57zYYOtz0TmLnsQjao2e2LiaFiBW1QJWJN8u9UST24SkNrfkuyDD4MxoflyON7GyFp6-Iz7Cvb6EFNeD5-NfIxwgAfR5Sic2IRCJD6nOl7qnvHExFUkEOY3CXPMoMDzCfc/s320/Oahu+Adina+2013+057.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hang Loose</td></tr>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb3dE02yILOmD1ysQjwB2NZn2Wbk4J3mfpxFcdQ4nR7_NpfukaPHGuQ6U9UdKnX2pO1x7JIivbrG9qhYN9-iUCLlZdSqXmpjk5hH-u8rINmpvmon-fMKzUgfYz6q46FNYKoKgZGpkgg1k/s1600/Oahu+Adina+2013+076.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a> </div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjEJLWhGhccSTR-2pGWSAR8z_TFv0-AWDqHoVYIS8Uvo-KSZ2H82XR0YPa4LLs13-LkJxWb72m4agAMNE6ZcgJn8mUEduk0QU_wpGBfqQu-fdTyCcwETeT0Y7HuJnaPoREfVmLGMgpIj8/s1600/Oahu+Adina+2013+078.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjEJLWhGhccSTR-2pGWSAR8z_TFv0-AWDqHoVYIS8Uvo-KSZ2H82XR0YPa4LLs13-LkJxWb72m4agAMNE6ZcgJn8mUEduk0QU_wpGBfqQu-fdTyCcwETeT0Y7HuJnaPoREfVmLGMgpIj8/s320/Oahu+Adina+2013+078.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Only in Hawaii can you take photos that are postcard worthy</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjM0AstPjz6tqfpXCIT3O9l5EVWkDgMpPHpe_dRG5RmS-X5eYjJ4moqLrTLAopBYUnuqxwJM_IW1uVBdj1DtgAx1etKRoJg_bdnI8oXbgzj-zHgMfU2inZOjeOql8jmMRNZXpFRbNXAqrg/s1600/Oahu+Adina+2013+111.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjM0AstPjz6tqfpXCIT3O9l5EVWkDgMpPHpe_dRG5RmS-X5eYjJ4moqLrTLAopBYUnuqxwJM_IW1uVBdj1DtgAx1etKRoJg_bdnI8oXbgzj-zHgMfU2inZOjeOql8jmMRNZXpFRbNXAqrg/s320/Oahu+Adina+2013+111.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Tube feeding in Hawaii</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvnV5UttVqgwr-jTLcYw5UtT72hk4CteaHwv2shSO58FeiyzLz960Tr0_zWGLAyIhxpKZoeLZh65853TSQlnyws_S0cWz3iNwp2UneXkVKYmNNirgkVfBSJ4GBqeTYVHEbTWRcTdoSNmM/s1600/oahu+2013+A+011.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgvnV5UttVqgwr-jTLcYw5UtT72hk4CteaHwv2shSO58FeiyzLz960Tr0_zWGLAyIhxpKZoeLZh65853TSQlnyws_S0cWz3iNwp2UneXkVKYmNNirgkVfBSJ4GBqeTYVHEbTWRcTdoSNmM/s320/oahu+2013+A+011.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Everyone loves a warm ocean, sorry California just not the same</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimjrR97Ji-CeNhCQgSMVYhT9lXNYFdrCb4SPeE_R_k23bVqQ-54EWNfv5QD0QS98-oB70eQW15dxKQqepby-gW3Nrqm9Weh2egKE4CreXDm5q_7eWOOqi4qs0qiR7adqz2EHR0QFTMhBo/s1600/oahu+2013+A+063.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimjrR97Ji-CeNhCQgSMVYhT9lXNYFdrCb4SPeE_R_k23bVqQ-54EWNfv5QD0QS98-oB70eQW15dxKQqepby-gW3Nrqm9Weh2egKE4CreXDm5q_7eWOOqi4qs0qiR7adqz2EHR0QFTMhBo/s320/oahu+2013+A+063.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Zac loves water falls</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJpAEc6XNuGasUgZE81mXRyvk2kR9T1DJR4XiHrH7KHGsKKX4z9DPJ1M6EzOm_5a4dzWNkijN3nb6tUd8ewFGY9yI8YRiJinSmhiyb3aOP5niJQ17VpFWzaznnDq8aO1mpuPeRoxNNVx4/s1600/oahu+2013+A+098.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJpAEc6XNuGasUgZE81mXRyvk2kR9T1DJR4XiHrH7KHGsKKX4z9DPJ1M6EzOm_5a4dzWNkijN3nb6tUd8ewFGY9yI8YRiJinSmhiyb3aOP5niJQ17VpFWzaznnDq8aO1mpuPeRoxNNVx4/s320/oahu+2013+A+098.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Enjoying the sun</td></tr>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA1baJOXrBQFbSk0Fv0MIRH-vctoXBwvzn4dPK3_VDk68wcLQihPymwpSX-P7t5cvpkrQ1wPbLXsZ1Wm2MXE6qNLGO2o7r66KQvWVR6X4RQqN0QSDFvmKLl-4ftjij_1cRlxwoggmpAeY/s1600/oahu+2013+A+212.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgA1baJOXrBQFbSk0Fv0MIRH-vctoXBwvzn4dPK3_VDk68wcLQihPymwpSX-P7t5cvpkrQ1wPbLXsZ1Wm2MXE6qNLGO2o7r66KQvWVR6X4RQqN0QSDFvmKLl-4ftjij_1cRlxwoggmpAeY/s320/oahu+2013+A+212.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">First time boogie boarding</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeLxF5lBp76kGcror6u1OT1UGJfwZJDzyhTKZPU6pWKUL0rm-eCrGJbXnBiWqMs0UI3gZ32rSU4rCW9iMczPXpLRf1xEF_DDM2u9S8ke7SszMv7j8freG_cuXwutE4TF_1nFRXW7gXbBI/s1600/IMG_2881.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="213" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgeLxF5lBp76kGcror6u1OT1UGJfwZJDzyhTKZPU6pWKUL0rm-eCrGJbXnBiWqMs0UI3gZ32rSU4rCW9iMczPXpLRf1xEF_DDM2u9S8ke7SszMv7j8freG_cuXwutE4TF_1nFRXW7gXbBI/s320/IMG_2881.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">We really did go to the zoo, the Lund Family loves the zoo</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Dole Plantation</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Exploring the tide pools</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Our only family pic from the trip</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7DShcMwqsSjIxjXgoIlJcIFiv4jkYNmM570eHSUSS9n4r2Ui7lsk24Z9oACM3Y3n_QHW0wrlf2bxySFIpEdVUhr3QHWXo9jmYyKMRNBaaB18aHK_PpyEcB0uKVLFBDVwcBrFbLMUdVv0/s1600/IMG_2968.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi7DShcMwqsSjIxjXgoIlJcIFiv4jkYNmM570eHSUSS9n4r2Ui7lsk24Z9oACM3Y3n_QHW0wrlf2bxySFIpEdVUhr3QHWXo9jmYyKMRNBaaB18aHK_PpyEcB0uKVLFBDVwcBrFbLMUdVv0/s320/IMG_2968.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">How much longer will he want to hold my hand</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJNfbE35VoVeMDIs7Llks_XNNM_RSHUTT-5FGivEybufFtIB5vbOKHoZx1jYALCpL5BlJ_qUKE_4QHgcgMoPGdF4ez-LnuIGtIqc4igE0po5T1ipzvOsVknVAnaUPrboEh9dDhmyWwBB4/s1600/IMG_2975.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJNfbE35VoVeMDIs7Llks_XNNM_RSHUTT-5FGivEybufFtIB5vbOKHoZx1jYALCpL5BlJ_qUKE_4QHgcgMoPGdF4ez-LnuIGtIqc4igE0po5T1ipzvOsVknVAnaUPrboEh9dDhmyWwBB4/s320/IMG_2975.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Such a serene setting</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">More waterfalls</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Too cute</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAsRRcO7mm_4UF-5IGKBzHmE4sKEXoEs0SR02qd1_VfL5LQzC8UGDMNrWQX1DJHXkqJk0q9ghnTgpvEd2arS_Xvlv6WNHQP7MkwzaOBWkZkeLxPcsFs8ayQmzk1HHbRgCHMVtnYe4WtzI/s1600/oahu+2013+A+057.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAsRRcO7mm_4UF-5IGKBzHmE4sKEXoEs0SR02qd1_VfL5LQzC8UGDMNrWQX1DJHXkqJk0q9ghnTgpvEd2arS_Xvlv6WNHQP7MkwzaOBWkZkeLxPcsFs8ayQmzk1HHbRgCHMVtnYe4WtzI/s320/oahu+2013+A+057.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hang Loose</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLwGMH91CVZUfJtGQFJsbHqGzphrZRadJmHo3ctdcIQu9bwzozG-5m_jFGKYv51ca3csqEwUy61PWfAAxH3FTtztWmijzaHHBuXTdE9p-FER0ZRo1VxB9ZM3EdX7mqa3Zdy1lW4n6DSJw/s1600/oahu+2013+A+119.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLwGMH91CVZUfJtGQFJsbHqGzphrZRadJmHo3ctdcIQu9bwzozG-5m_jFGKYv51ca3csqEwUy61PWfAAxH3FTtztWmijzaHHBuXTdE9p-FER0ZRo1VxB9ZM3EdX7mqa3Zdy1lW4n6DSJw/s320/oahu+2013+A+119.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Snorkeling like crazy loved it</td></tr>
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<tr><td class="tr-caption" style="text-align: center;">Funny Zac</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXPQzTnghHMV2d1KCcGCX03ufhZSVjIsZ6CiSnKm7QAVe58yGKT44MQRHcrCAnSxnMDD3NV9BVyp_XFvEw9u9UDja44-IUHkSt97_xG8JvfjuhyphenhyphenncIYe609n9OtjbeGSmTyxxd1NSSjeE/s1600/Oahu+Adina+2013+102.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhXPQzTnghHMV2d1KCcGCX03ufhZSVjIsZ6CiSnKm7QAVe58yGKT44MQRHcrCAnSxnMDD3NV9BVyp_XFvEw9u9UDja44-IUHkSt97_xG8JvfjuhyphenhyphenncIYe609n9OtjbeGSmTyxxd1NSSjeE/s320/Oahu+Adina+2013+102.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Zac's first canoe<br />
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<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1tag:blogger.com,1999:blog-8804044294518893734.post-84593178769345405012013-06-04T07:02:00.002-07:002013-06-04T07:02:35.146-07:00Feeding Therapy Weeks 4 and 5<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjT_GUSU8VjcikPRQgPxOH2dqwUXJIf22e490_TL4SmGGmWDTX_1uMTbs5wH_MNkpUtvZlPhyphenhyphenHhFEH0yQpMGFydGUai2UNHHkS2rKaKemwkZTZz3PkxAVw0IsLFJTrg1zfOWVQ5HKtfhbk/s1600/070.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjT_GUSU8VjcikPRQgPxOH2dqwUXJIf22e490_TL4SmGGmWDTX_1uMTbs5wH_MNkpUtvZlPhyphenhyphenHhFEH0yQpMGFydGUai2UNHHkS2rKaKemwkZTZz3PkxAVw0IsLFJTrg1zfOWVQ5HKtfhbk/s320/070.JPG" width="320" /></a></div>
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So week 4 we saw our feeding therapist for 5 days in a row then came week 5 we saw her for 1 day, her last. The goal was 25 sessions in 5 weeks; we ended with 18 sessions in 5 weeks. So we have 7 more to go over the next two weeks with a new therapist. This is not because we missed a single session, our therapist had other plans. So I am not sure how intensive it is 5 days week 1, 5 days week 2, 2 days week 3, 5 days week 4, 1 day week 5. Let's say still no real progress. We are stuck at more or less the same place. We have better lip closure, better tolerance to brushing teeth, we have better utensil usage. But he still doesn't swallow, he still does not have a food or drink that he likes, he still will not take more than 3 tastes of any food before he signs and says "all done". </div>
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We do meet with the same doctor every week and we are exploring our options. Trying to get enough swallows to do a swallow study not for aspiration purposes but to see what is going on with the swallow. This is a remote possibility. We are going to trial vital stim for one week to see if he can tolerate the procedure. If he does then we will be on the wait list to start in 6-12 months. It would be therapy 4 times a week for 6-12 weeks.</div>
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The last option the doctor presented is the inpatient feeding programs offered at CHOC (Children's Hospital of Orange County, CA) or on the East Coast. More or less a behavioral psychologist feeds your child for 6 hours a day presenting a spoon or cup until they take a bite or drink then they get a reward....for 6 hours a day. We are not sure David has the mechanics, motor planning, or capability to swallow how can I put him in that situation? I gracefully declined and said that would be something to explore in a few years, maybe. I forgot to mention leaving Zac and Daddy and living in a hospital or a Ronald McDonald house for 6-8 weeks. <br />
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I am not even sure how happy I am to be finishing this program. It has caused a lot of stress on our family. It is a huge time commitment. It impacts David's naps every day which makes him very unhappy and tired. It has led to more food refusal at home as far as tasting food and trying new things. It has stressed me out and pushed me to my limits of balancing work and home. It has led to many discussions between me and my husband some very intense. I do feel there is no respect for the commitment made by the family, there have been some late cancellations, there are many hours waiting for the doctor to see us, and quite frankly we still don't see the benefits of the occupational therapy component (a whole different story on that later).<br />
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The pluses are knowing we are doing all we can do. Having a team try to work through ideas with us. Being taken seriously by the medical community that this is a very real issue. Hubby and I really ending up in the same place at peace with the feeding tube but still working towards our goal of David eating (not his goal clearly).<br />
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My parting random thoughts for today.....it is easier to accept my child has Down Syndrome. It is not common for a child with Down Syndrome to be 3 and 100% tube fed not showing active swallowing and no one can explain why, when, if, nothing. He perplexes so many people and that is not comforting. I am an engineer 1+1=2 every day of my life. The "practice" of medicine still drives me batty. I haven't fully embraced the feeding tube even though I really, really want to. I love my child to the end of time and am thankful everyday that we have him on this earth. He amazes us every single day with all of the things he can do. I often underestimate his many abilities. Trying to keep my sanity. David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-48380024900608886982013-05-18T13:55:00.000-07:002013-05-18T13:55:04.176-07:00Can't Crack the Code: Week 3 Feeding Therapy<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Ft1N9ov6s_W0I-D4_OPUGq2UB8DzeYLFxB1KgBhe5pOgAzGaYGzK6a_rJmKzkVCHPYegmoUNztcaSNBB8Mk02v3jW3r7X8J5LeUM72sKo_oV0LqKO6Y4qMOWGtkFkntdWDcG-uxeN4M/s1600/IMG_2710.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_Ft1N9ov6s_W0I-D4_OPUGq2UB8DzeYLFxB1KgBhe5pOgAzGaYGzK6a_rJmKzkVCHPYegmoUNztcaSNBB8Mk02v3jW3r7X8J5LeUM72sKo_oV0LqKO6Y4qMOWGtkFkntdWDcG-uxeN4M/s320/IMG_2710.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">David's first baseball game sat through 9 innings</td></tr>
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They are starting to see what we have always seen, very few swallows. <br />
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Every time David sees a new feeding therapist they are so optimistic during the evaluation. He accepts foods, he puts food in his mouth, he sits through a 40 minute session. If he gags and chokes, he tries again. They all think it is going to be so easy. <br />
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Well week 3 they had a team meeting and the result is the team is growing. His first therapist at the Clinic is moving at the end of the month so we are getting a new therapist that works with kids with Down Syndrome, but wait there's more. They are bringing in a third therapist who is certified for vital stim. <br />
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They want to examine all possibilities through the therapy program which will go into week 6 and possibly 7. Then if he still is not actively swallowing they will be looking for some much rarer possibilities. This is wonderful news, why....they aren't giving up.....they aren't recommending continuing the same treatment for another three years with no results. They appear determined to get to the bottom of this. <br />
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I can't wait to play this through until the end. This is my idea of possible outcomes: 1) he begins to swallow 2) he gets diagnosed with something new (repairable or not) 3) they never figure it out. <br />
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The bottom line is I will feel at peace that we have done all we can do before we go back to our "normal" lives. We can go on our family trip to Hawaii in July and David can start preschool in August. And through it all he will be nourished one way or another and grow big and strong; goal met.<br />
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<tr><td class="tr-caption" style="text-align: center;">David checking out his new preschool at the local elementary school</td></tr>
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<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1tag:blogger.com,1999:blog-8804044294518893734.post-79091564590653248652013-05-10T07:56:00.001-07:002013-05-10T08:13:35.786-07:00Intensive Feeding Therapy Week 2 <a href="http://lh5.ggpht.com/-fAEqWMxuf4g/UY0Kd4L0NnI/AAAAAAAAAqk/Itxi5eJUylE/s0/2013-05-07_11-14-19_932.jpg"><img src="http://lh5.ggpht.com/-fAEqWMxuf4g/UY0Kd4L0NnI/AAAAAAAAAqk/Itxi5eJUylE/s400/2013-05-07_11-14-19_932.jpg" /></a><br />
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The schedule is really difficult. Monday 10-12 and Tuesday through Friday 11-12. Add travel time 45 min each way. Add Friday appointment with nutrition and gastrointestinal doctor. Now if you are really crazy keep working 20 hrs a week (usual is 30 hrs). Hubby has taken one day a week which really helps me mentally.<br />
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The first week was really getting to know David. He has an occupational therapist and a speech/feeding therapist. They needed to see his reaction to foods, approach, touch, people, praise, etc. He is already use to seeing 5 therapists a week and numerous teachers at daycare so he is very receptive to new people, therapy, and following directions.<br />
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The therapists observed what we have always known ....he won't swallow. So they are really working on the mechanics of moving food to the back of the throat and making the swallow happen. We focus in Beckman Oral Motor Skills, a series of stretches to the face, lips, and mouth. We work on cues for lip closure, moving tongue to the roof of the mouth, tongue movement in general, and biting/chewing.<br />
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We are making tiny improvements which are only apparent to us. From the outside looking in he still can't eat. But from our side he is learning new skills and the mouth is moving differently. An added bonus just might be some better articulation.<br />
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Looking forward to the next few weeks for more tiny steps or should I say bites.<br />
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David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1tag:blogger.com,1999:blog-8804044294518893734.post-3029247055146766072013-04-27T10:12:00.000-07:002013-04-27T10:12:53.886-07:00Intensive Feeding Therapy Begins Monday<div class="separator" style="clear: both; text-align: center;">
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Tomorrow we begin our next adventure. Feeding therapy 5 days a week at our local Children's Hospital. I am nervous. I am excited. I am cautiously optimistic. It will effect our schedule, lives, work, stress, 5 days a week for 5 or 6 weeks. Praying for a miracle. My definition of a miracle.....David to actively swallow something..... food, drink, baby food, yogurt. Stay tuned for more updates to come.David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-37794916534549464972013-03-22T14:18:00.000-07:002013-03-22T14:18:20.316-07:003 Years Old is Looming<div class="separator" style="clear: both; text-align: center;">
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I don't even know where to start, so much has changed from last year. The biggest changes from 2 to 3 years old is the walking and the talking. David walks everywhere, he still wears shoe inserts (smo's). He does not run or jump. He says he is running and walks really fast with his arms held out behind him. His talking is huge for him, he can do two word combinations like "bye daddy", "woody on", "daddy 'ome (home)". He mimics anything you say. He does not speak very clearly but we understand. He says words spontaneously now, which is a big deal for him. He knows his colors. He knows some letters. He still signs a lot which helps when I can't understand what he is saying he pairs the sign with the word.<br />
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David is still very social. He says hi to everyone when we are out. He is very drawn to adults. He loves to get peoples attention and make them smile. He does not like it when other kids cry or scream, it upsets him greatly.</div>
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Zachary is still the best big brother ever. He loves David, he is starting to understand what Down Syndrome means. He has decided he will do all of David's homework when he starts school so David will never be behind. He helps David and keeps him from getting into trouble (such as running across the street or escaping out the doggy door).</div>
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David's favorite people are Daddy, Zachary, and then maybe mommy. He loves the dogs but is often seen pulling out their hair or kicking them or hitting them with a bat.</div>
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David still sleeps in a crib. This is mostly to contain him. He often wakes during the night. He still takes a 2 hour nap every day.</div>
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David is still 100% tube fed. Hoping to be in intensive therapy by June. The goal is just to get him swallowing. It will be a long road until he can eat by mouth. We are still hopeful, although some days I get discouraged.</div>
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David does what most kids do. He likes the park. He likes to catch and throw a ball. He likes to swing and go down the slide. He likes to be silly. He loves to help clean things and helping with laundry. He loves to climb (I still don't know how he does that so well). He just takes longer to learn things. He has to be taught how to kick and jump and then we have to wait for the muscle strength and control to be at a point where it can all come together and he makes it happen. </div>
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David appears to be healthy. His heart is fine, his lungs are fine. He has some swallowing issues, some of that is medical. He sees quite a few specialists, more than everyone combined in the family. He does not go to the dentist. Between his oral aversion and his slowness at teething we have not attempted this yet. He finally has all of his top teeth, last one is coming through right now. On the bottom some are still missing and they look terribly strange and arrived in a haphazard order.</div>
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This upcoming year will be busy with intensive feeding therapy this summer followed by pre-school in August. </div>
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He will be attending the same school as Zachary, the local elementary school. We are in a well known school district for special needs, Deer Valley Unified. That is just luck we have lived in this house for 10 years. His preschool teacher just happens to have a daughter that use to be fed by g-tube. They have a knew program that includes a sign language interpreter and a teacher from the school of deaf and blind. There will be 18 children, 4 of those are typically developing (siblings of the others), most of the others are delayed in one area primarily speech. The program has 5 adults. This may not sound like a great ratio to you, but right now he has two adults and 22 kids in his class. He will continue to spend half the day at his daycare he goes to right now where he is the only special needs student. </div>
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We have not started potty training due to the g-tube. Because of the tube he still wears a onesie under his shirt (so he won't mess with his tube). Kind of hard to practice sitting on the potty with a shirt hanging down. He also cannot pull up and down his own pants yet. He is getting better at this and hopefully we will be working on this in the next year too.</div>
<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-8162842357101190402013-01-29T09:19:00.000-07:002013-01-29T09:19:20.534-07:00Intensive Feeding Therapy Evaluation<div class="separator" style="clear: both; text-align: center;">
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The location is a children's hospital so I am not sure why I was surprised that it started out more like a medical appointment than a feeding therapy session. Maybe because the instructions were to arrive with your child hungry, they will be evaluated by an OT and a ST, bring all of the foods you would normally feed him (ones he likes and doesn't like), bring bottles or cups he will use, bring spoons, etc. </div>
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They wanted to begin the appointment by stripping him down for height, weight, blood pressure, and pulse ox readings. I refused. My kid has been through numerous medical procedures, he is not a fan of doctor's offices, people in scrubs, being examined, being restrained, being stripped naked, etc. So why would you want to start a feeding evaluation by pissing him off. I said they could do that stuff at the end of the appointment. I still didn't like it; we had been seen at the same office Dec. 18th (not huge changes in the month since they did these stats).</div>
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So we move to the evaluation room, what I thought would be a therapy room. What is a therapy room...oh it should look like a home setting. Either a play room or a kitchen I would settle for a conference room. No not here, it is an exam room with a high chair. We were there for 3.5 hours in that exam room. Boy was it fun. The OT and ST were awesome, amazing, loving, caring, etc. The setting sucked. David was a trooper. He performed well showing his stuff. Good things like his OT skills playing with two hands, coloring, making straight lines, identifying some letters, signing and talking. And the reason we were there the lack of eating. I don't know how much I explained he does not swallow but they just didn't get it. Well I think they finally got it when we did feeding therapy. He tastes, he licks, he bites, he says yummy, he makes choices but he does not swallow. He plays with food and brings it into his mouth but he does not swallow.</div>
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After his stellar performance we had to wait about 15 minutes for a decision from the team (nutrition, GI doc, ST, OT). You would think it was his evaluation to get into private school. Well they came in and they accepted him into the program. It will be 5 weeks of intensive therapy ST 5 days a week for an hour OT 3 days a week for an hour and meetings with GI and nutrition each week. They coordinated the surgical procedure with the snooty ENT (which I was unable to do, so that was a plus). And now we wait we will get a call in 6 weeks to 3 months with a time slot. If the time slot doesn't work (because it is nap time or something) we wait until we get a slot that works. Then Steve or I will take a leave from work, FMLA and take half days for 5 weeks to get him to the Children's Hospital M-F and try to get him to swallow. </div>
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Our goal is not to get him off the tube, we just want a child that can swallow something like a bite of cracker or a spoonful of yogurt or a sip of juice. We don't expect a miracle....that will come in time. </div>
<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1tag:blogger.com,1999:blog-8804044294518893734.post-90085296089312585252012-12-21T13:50:00.001-07:002012-12-21T13:50:44.188-07:00Feeding Update Hmmm and ArghhhhBe careful what you wish for......remember the post from November. Something to the effect of "at this point I just may be hoping for something that can be surgically repaired". Well, they found something but they are not sure if they can repair it in David. A laryngeal cleft, type 1. The most mild form. Not typically associated with Down Syndrome although when I put together my engineering brain it should be. It is something that is not fully formed (just like his heart that had a cleft mitral valve, hmmmm). <br />
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His case becomes more difficult because he does not have extra tissue there to just stitch it together. So they are considering an injection that would last 3-6 months that could be repeated. <br />
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What is this laryngeal cleft, in simple terms it causes kids to aspirate (in simpler terms drinking liquids can go right to the lungs). What signs do we see in David since he refuses to swallow? Well, he has a high incidence of water down the wrong pipe. Swimming or baths or the rare occasion of a sip of water. Often ends with choking, gagging, coughing, and a big burp. Usually followed by crying. Would you want to try to drink if this was your typical experience with drinking, hmmmm.<br />
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Our doctor is not a big proponent of moving forward with the repair. He refused to scope to look for this defect and only reluctantly agreed because the GI was going to scope with or without him. He thinks it is not a huge deal because David doesn't aspirate because he doesn't drink. Well, what if fixing it could lead him to drinking and eating and removal of the g-tube. <br />
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This is going to lead right into a doctor vent. The ENT does not deal with feeding issues. He knows nothing about feeding. Yes, David historically has a million reasons why he doesn't eat, but now he has one that is possibly able to be medically repaired which could change things. The doctor who has never observed feeding therapy for any child, yet alone my child, still thinks the feeding issue is behavioral or a down syndrome thing. Although our current feeding therapists believe that to be incorrect. Arghhhhh.<br />
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The hero in this story is the GI doctor who is diligently pursuing this with the ENT and trying to get him to change his mind. My heart tells me to change ENT's (although all roads lead to this ENT for pediatrics and down syndrome in the Phoenix Valley) although I do know he is a brilliant doctor. His bedside manner has rubbed me the wrong way for 2.5 years. He has placed David's ear tubes twice and taken out his adenoids and tonsils (all medically successful). I am leaving this decision until January.<br />
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Until later, David remains 100% tube fed and a relatively happy toddler. Mommy remains 100% aggravated with the medical community, a little short of sleep, and in love with her husband and two children.<br />
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David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-85382893507437921112012-12-05T07:07:00.001-07:002012-12-05T07:08:15.728-07:00Holiday Picture Fail<div class="separator" style="clear: both; text-align: center;">
Why do I try to do my own pictures it is always epic fail. This year Zac looks drunk and David looks like he is getting squeezed a little too much by big brother. What is the solution..........</div>
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We are going to Disneyland. Hoping for a good family photo there to send out to my peeps.</div>
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<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1tag:blogger.com,1999:blog-8804044294518893734.post-72857311006343193392012-11-02T07:33:00.000-07:002012-11-02T07:33:44.914-07:00Love Hate Relationship with the Feeding TubeThe feeding tube. It can drive me a little crazy at times. I will start with the good. He would not be alive if he did not have his tube. He can be fed anywhere anytime. He can be awake or asleep. He has never been dehydrated due to the tube: formula, water, juice, pedialyte no problem. All medications through the tube, life saver once again.<br />
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<tr><td class="tr-caption" style="text-align: center;">You think about how to feed a kid in a one piece costume....</td></tr>
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The things that are a bit odd. I am supposed to count every calorie that goes through his tube. I try not to be obsessive about it. I don't write down his feeds anymore (that stopped about a year ago). I do know that one ml of formula is 1 calorie. I do know our calorie goal is 900 per day to gain weight. It appears at 820 to 850 he maintains his current weight. I know there are approximately 30 ml in 1 ounce; I learned this when he was still in the hospital as a new born. I go shopping for juice and look for the highest calorie juice I can (140 cal per 8 ounces is good 110 or 120 and I will pass). He is on soy formula, no milk. I tried some other cool drink that had a whey protein, that made him puke for 6 hours. He cannot have dairy, lesson learned after the dry heaves, puke through the nose, shakes, sweats, etc. The child walks over to the scale every day to weigh himself, that is so not right on so many levels. We are in a mode to try to gain weight. I was back to waking up at night to feed him at 3 am it was rough. I backed off for two weeks but will probably resume again as he is only maintaining. He can only get so much in his stomach by day before he throws it back up. If I put in too much it is coming right back out, so you guess and you push it a little and you wait to see. With teething and illnesses it is harder as he tolerates less volume. <br />
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The hardest part. Is him not eating, at all. It is so difficult that he cannot swallow anything. I mean a speck of egg, a crumb of gold fish, a mouthful of baby food. Sometimes a sip of water although that may choke him out. It gets extremely difficult to try every day to feed him watching him move the food to the roof of his mouth or to the front bottom lip so he can just lean over and let a slimy wet mess of slobber and food pour out of his mouth. It is almost panic, maybe fear, disgust. I don't know. He likes to say and sign All Done during these times. He will lick salt from crackers, pretzels, etc. Hell, we have put a pile of salt on the table and watched him go to town. Change that to sugar or baby food you will get an All Done almost instantly.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKMDsCNPHR_VXio2_Lj99s2_u3CxWNFE2Qi_KMJ1gx5FM2EXQBsK940GKStWUsXXDyuOErqpDt8cRgngng02-29S8bzuLSgAWxtTtq-l55bXCn_JCVzVMy5SkPrwALccorpydgBNlS30k/s1600/001.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjKMDsCNPHR_VXio2_Lj99s2_u3CxWNFE2Qi_KMJ1gx5FM2EXQBsK940GKStWUsXXDyuOErqpDt8cRgngng02-29S8bzuLSgAWxtTtq-l55bXCn_JCVzVMy5SkPrwALccorpydgBNlS30k/s320/001.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Give the kid an empty bowl he is happy as can be...add food he is ALL DONE</td></tr>
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The extreme hardest part. No one knows why. The list of possibilities: he never learned to suck swallow breath, he had a bad heart, bad lungs, he was on a vent at birth, he breathed way too fast to attempt to feed the first 3 months, he has sensory issues, it is behavioral, it could be structural, blah, blah, blah, blah. At some point his not eating cannot be blamed on his terrible health at birth.....he is 2.5 years old. His heart has been repaired for a year. How can it be sensory when he picks up the food, puts it in his mouth, and tries to swallow. ARGHHHHHHHHHHHHHHH.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgD9SvlGZ9Ihb1tGSiC8bp4aFZ66KCTcgbYpUB_1unI_nMWxdis1fTWJMXXwwM2DFrhL0NTPxn4oRTlDrHol5xevW3YwsNxvuWKt-Bhfi34FH6gC0UQf_trPKGiN3grRg9SawsiA25Cd9M/s1600/029.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgD9SvlGZ9Ihb1tGSiC8bp4aFZ66KCTcgbYpUB_1unI_nMWxdis1fTWJMXXwwM2DFrhL0NTPxn4oRTlDrHol5xevW3YwsNxvuWKt-Bhfi34FH6gC0UQf_trPKGiN3grRg9SawsiA25Cd9M/s320/029.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He is showing me how to relax</td></tr>
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Where are we know. He is 100% tube fed, zero calories by mouth. He has feeding therapy once a week. We are following up with a feeding guru Marsha Dunn Kline in Tucson next week. She saw him last year and help us with open cup tasting (it is not drinking) and crumbs (it really helped him get the food from the table to his mouth). We are hoping she will have some more ideas. We then move on to a repeat swallow study to check for aspiration, maybe he is protecting his airway because it goes to his lungs. He was tested at 7 months old with one sip and one bite and supposedly passed. He tends to choke on water (bath tub, swimming pool) every time. After that evaluation he will be scheduled for an in depth scope of throat and his whole GI system under general anesthesia to see if there is a medical reason he cannot swallow (I just might be praying for something we can surgically repair at this point, that is how frustrating it has become). And the last straw is we are on the waiting list for an intensive feeding program at our local Children's Hospital that I don't even like because I am desperate.<br />
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<tr><td class="tr-caption" style="text-align: center;">All full of laughter</td></tr>
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Just some more observations. A typical child (I have one of those too) will eat when they are hungry. David is never hungry. He does not get whiny or grumpy if you skip or delay a feed or three. When they have a growth spurt they eat more calories, I get to choose when David will get more calories whether he wants them or not. When a child has an upset tummy they will not eat. I shove it in the tube and find out after he pukes that he is not feeling well. Using food as a reward is not possible with David. There is no m&m's for potty training or a sucker if you get your haircut or here's a bowl of cheerios to eat on the way to Nana's. No birthday cake, no smells of your favorite foods, no trick or treat candy, no Easter candy, no chips and dip (that is my favorite, just sayin), it is really bizarre when I think about it.<br />
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On a day to day basis. I tube feed him throughout the day. Day care is trained and they feed him at school. After a hot day on the playground he may get some water in his tube. Usually, we push formula or juice for the calorie needs but water at an amusement park or the zoo is a great help. I always fear when day care calls that it will be "the call" that his tube came out. So far it has never happened (only at home). He wears a onesie under his shirt so that he can't mess with the tube (he has pulled it out before); I am not sure when that will stop so we can try to potty train him. He is a toddler so making him stop playing to be fed is very annoying to him lately. The other kids obviously know he is different but to them it is normal for David as they see him every day. Sometimes it embarrasses Zachary because people stare when I feed David in public. I never mind when people stare, hell it is odd/different/strange/unique. I do answer questions when someone works up the nerve to ask.<br />
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9ZAXfiwPRqsHIzT5VERa79voH4Se4I7F7yMHZWVTKbVWUPONPdE7RxwxXgK56wz6lck5Rn-P1iyBwLca3sCNihcbsruPIHjvwRV2Gyu2YQrm0UObhR_cU0apmKQGuE6kWEedBRCgd5bk/s1600/052.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9ZAXfiwPRqsHIzT5VERa79voH4Se4I7F7yMHZWVTKbVWUPONPdE7RxwxXgK56wz6lck5Rn-P1iyBwLca3sCNihcbsruPIHjvwRV2Gyu2YQrm0UObhR_cU0apmKQGuE6kWEedBRCgd5bk/s320/052.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He loves to help</td></tr>
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At the end of the day, this is really all that I currently have to complain about with David. He is healthy in every other way and he is growing and learning. The tube makes it possible to fight infection, get nutrition, grow, learn, play, laugh, etc. Hail to the tube. To everyone walking by he is a little boy that happens to have down syndrome. Sometimes it is like a dirty little secret that catches people off guard when I lift his shirt to feed him (you can see the look on people's faces).<br />
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<tr><td class="tr-caption" style="text-align: center;">He is learning to kick a ball and to catch, he throws great</td></tr>
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<strong>Thank you for the therapy session.</strong> </div>
David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1tag:blogger.com,1999:blog-8804044294518893734.post-1638760403595505822012-10-26T07:23:00.000-07:002012-10-26T07:23:29.556-07:00Fundraiser: Cutest Bags EverIf you have not heard of Thirty-One before you need to check them out purses, bags, totes, etc. Great for moms, working girls, and especially special needs moms.<br />
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I am having a party to raise funds for the Congenital Heart Walk to raise money for <a href="http://www.childrensheartfoundation.org/research/chf-funded-research">research</a>. You can donate on my <a href="http://congenitalheartwalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=1029497&lis=0&kntae1029497=C9FB9371A7934AA28875C180EC6527FA">page</a>. Or you can have some fun and buy some super cute bags and 20% of your order will go towards the fundraiser and you will get a super cool bag. Order at <a href="http://www.mythirtyone.com/mrakolta">http://www.mythirtyone.com/mrakolta</a> go to my parties and look for Adina Lund's Fundraiser. <strong>You can only shop until October 30th</strong>.<br />
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My favorite lunch bag is from thirty one. It is super cute, large, and thermal insulated.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj53gE2EOv4dtyHFb-WL9uT6ACi3a41l5osFsb2gP7MtAtZ5vAfLhz5AIptZQrabzZeTgcvXyQ6WCEMls3gQiRNURCwsNkfebsxfn0FDhlKFVGyUGJ8nSbImJdOeR4yTq0zzpyO4MYeIng/s1600/001.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj53gE2EOv4dtyHFb-WL9uT6ACi3a41l5osFsb2gP7MtAtZ5vAfLhz5AIptZQrabzZeTgcvXyQ6WCEMls3gQiRNURCwsNkfebsxfn0FDhlKFVGyUGJ8nSbImJdOeR4yTq0zzpyO4MYeIng/s320/001.JPG" width="320" /></a></div>
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My super cool g-tube emergency pack, in case David pulls out his tube away from home. It is a thermal insulated make up bag. I choose this because it will be easy to clean if the lube breaks open.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKYEHj4fTAow3zmJSlGe9hvfAMBnVkutyh5ZP6TGNPMrZ9zBri-ZKk9IpEd-z3N_xWrUNdf0h6ygW6bv_0wF8aD5fQbXnoK8GBOzvu4pHIck-Bo-nleEPPBMHnLfxn7Xt8afwrbnG-dA4/s1600/008.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhKYEHj4fTAow3zmJSlGe9hvfAMBnVkutyh5ZP6TGNPMrZ9zBri-ZKk9IpEd-z3N_xWrUNdf0h6ygW6bv_0wF8aD5fQbXnoK8GBOzvu4pHIck-Bo-nleEPPBMHnLfxn7Xt8afwrbnG-dA4/s320/008.JPG" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4iWmpuXzSWZKmVkT5I9t78BYyqkjvvMHUEjwTSMvrvQL06MhncnpLyEJIxW90Vn_tTda50cnU6U1uEsatl26a2yECxfeGaVYx9uHRpVCNkbsO8mBDCeFVmI-jzdE5eeiOHJOexDogEWE/s1600/007.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4iWmpuXzSWZKmVkT5I9t78BYyqkjvvMHUEjwTSMvrvQL06MhncnpLyEJIxW90Vn_tTda50cnU6U1uEsatl26a2yECxfeGaVYx9uHRpVCNkbsO8mBDCeFVmI-jzdE5eeiOHJOexDogEWE/s320/007.JPG" width="320" /></a></div>
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And my go to bag that I use every week is this one. Today it is packed for feeding therapy. I also use it for overnight hospital stays. And when traveling great for the snack bag in the car, or the toys and books for the hotel, even saw a lady use it for the towel and swim suit for swim lessons. Love the pockets on the outside, it even holds my straw cup and a big Costco water. And since it is structured and stands up it doesn't fall over in the car. Super easy to grab and go and folds up small. This bag you can get for half off if you spend $31. So <strong>spend $31 and then this bag is only $15 dollars, this months special.</strong><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWoMqnK3E30apIeYP065RDQ_baPiKnNIJELYN8kFkETUcdpzlYSoIPkcyb-YrrUUV1cvy5DBQiAYvXa-UQoSPYXPwx_hs3h4sBTlxBdD4FIeMPF3Hbr3KrsSIpdrR93_nxpQ5VlbmBn34/s1600/003.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWoMqnK3E30apIeYP065RDQ_baPiKnNIJELYN8kFkETUcdpzlYSoIPkcyb-YrrUUV1cvy5DBQiAYvXa-UQoSPYXPwx_hs3h4sBTlxBdD4FIeMPF3Hbr3KrsSIpdrR93_nxpQ5VlbmBn34/s320/003.JPG" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgXIoGEPdY5jbOJunAD0MyE1SOVqC1icm5uPQGe7Nld6S9I_79Rti36IPIbjIF_PzhXVNF7JUhAI2Fb8zwYicCdYrDVmFnp702KEpogSCZKJUcDBxz3HEQU7XDyPbCFk0cRJd7qjSMuC4/s1600/006.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjgXIoGEPdY5jbOJunAD0MyE1SOVqC1icm5uPQGe7Nld6S9I_79Rti36IPIbjIF_PzhXVNF7JUhAI2Fb8zwYicCdYrDVmFnp702KEpogSCZKJUcDBxz3HEQU7XDyPbCFk0cRJd7qjSMuC4/s320/006.JPG" width="320" /></a></div>
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There are tons more great bags but these are my favorites. You should at least look at the website. You can always have your own party by contacting Melissa at <a href="mailto:melrakolta@gmail.com">melrakolta@gmail.com</a></div>
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Thank you for considering a donation to my fundraiser. Research saves lives and thirty-one bags are a fun way to help or you can donate directly to my page for the <a href="http://congenitalheartwalk.kintera.org/faf/donorReg/donorPledge.asp?ievent=1029497&lis=0&kntae1029497=C9FB9371A7934AA28875C180EC6527FA">Congenital Heart Walk</a>.</div>
David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-89475066574240788512012-10-17T05:37:00.000-07:002012-10-17T05:37:52.525-07:00Guest Post: What I Want to Know<span style="font-family: TimesNewRomanPSMT; font-size: xx-small;"><span style="font-family: TimesNewRomanPSMT; font-size: xx-small;"><div align="LEFT">
<span style="font-size: small;">I am lucky enough to know a handful of mom's who have adult children with Down Syndrome. I always have so many questions for the been there/done it moms. So I took an opportunity to do an email interview with one of those moms. Her daugther is 30 years old so this mom knows a lot. </span></div>
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<span style="font-size: small;"></span> </div>
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<span style="font-size: small;">This lovely mom is choosing to be anonymous because she would never want to embarrass her daughter or put too much out there about her. She is a wonderful caring mom who is very proud of her daughter. But I probably limited her based on the questions I asked. If you would like to know more add your questions to the comment section below.</span></div>
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<strong><span style="font-size: large;">Tell me when you accepted her as she is. When are you </span></strong><strong><span style="font-size: large;">sad? When does DS bother you? When does it not bother you?</span></strong></div>
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<span style="font-size: small;">I believe there will always be a sadness for my daughter and our family</span></div>
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<span style="font-size: small;">regarding her diagnosis. Obviously when she was young she certainly</span></div>
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<span style="font-size: small;">was not aware of her diagnosis. But even by first and second grade she</span></div>
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</span><br />
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<span style="font-size: small;">was keenly aware that she could not perform Math skills like other kids</span></div>
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</span><br />
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<span style="font-size: small;">did or ride a bike like others her age did. It caused her frustration but not</span></div>
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</span><br />
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<span style="font-size: small;">sadness. However, by her late teens she was quite aware of her diagnosis</span></div>
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</span><br />
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<span style="font-size: small;">and says she “hates” having Down Syndrome. She gets frustrated with</span></div>
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</span><br />
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<span style="font-size: small;">her constant minor health problems and just yesterday she said she was</span></div>
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</span><br />
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<span style="font-size: small;">almost 30 and had no husband or no family. She also developed anxiety</span></div>
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<span style="font-size: small;">issues in her late teens and I think this was when she truly became aware</span></div>
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<span style="font-size: small;">of her disability. It was very, very painful for her to have her graduating</span></div>
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<span style="font-size: small;">class leave the school and go on to college, jobs etc when she stayed</span></div>
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<span style="font-size: small;">behind.</span></div>
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<span style="font-size: small;"></span> </div>
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<span style="font-size: small;">I am not sure that I ever did not accept her for who she was. She</span></div>
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</span><br />
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<span style="font-size: small;">certainly was not the child I had wanted or anticipated but as a nurse it</span></div>
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<span style="font-size: small;">would have been impossible to be in denial. I grieved the loss of the</span></div>
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</span><br />
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<span style="font-size: small;">child I wanted, grieved her birth and the loss of what I might call the</span></div>
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</span><br />
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<span style="font-size: small;">“impossible dream”. I actually had no real idea of what her future would</span></div>
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<span style="font-size: small;">look like or ours for that matter. I just did what I had to do to keep her as</span></div>
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<span style="font-size: small;">healthy and stimulated as possible.</span></div>
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</span><br />
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<span style="font-size: small;">At this ripe old age of 60 my sadness is often fleeting and unexpected.</span></div>
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<span style="font-size: small;">Like watching one of my nieces hold their newborn. Just yesterday I</span></div>
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<span style="font-size: small;">heard a mother chastising her “typical” daughter in a store. I thought</span></div>
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<span style="font-size: small;">“with sadness” how I would enjoy be able to shop with my daughter and have</span></div>
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</span><br />
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<span style="font-size: small;">her enjoy it. Often it is seeing a typical “mother - daughter relationship”.</span></div>
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<span style="font-size: small;">One of my sister’s has 2 grown daughters and my other sister has 3</span></div>
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<span style="font-size: small;">daughters. I do often find myself jealous and sad when looking at the fun</span></div>
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</span><br />
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<span style="font-size: small;">my younger sister has with her 3 daughters who are 15, 22 & 25 yrs. old.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">I believe there is an underlying sadness that will always be there, to a</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">degree, but it does not control me or define me. I do not think that her</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">birth and diagnosis has really changed who I am but I have worked very</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">hard at trying to keep our family’s life as “normal” as possible. I do</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">believe that her diagnosis has changed my husband and that her</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">diagnosis has been harder for him to accept.</span></div>
<div align="LEFT">
<span style="font-size: small;"></span> </div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">My daughter lives with us and will until we are not able to care for her and then</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">she will live with one of her brothers. She does almost everything with</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">us and is an integral part of our family. Most of the time I do not even</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">think about her having D.S. She is who she is. However I am keenly</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">aware at this age in our life that we are very limited in what we can do</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">compared to my friends. Some of our friends are retired and many</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">others are ramping their careers down. At the same time we still have a</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">dependent at home who requires a significant amount of time, effort and</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">money.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<strong><span style="font-size: large;">Hardest times in your life with DS? Health issues? School?</span></strong></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">I believe the hardest time in our life was definitely when she was born</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">and adjusting to our new “normal”. She had constant doctor’s appts. in</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">spite of the fact that she was really quite healthy. My boys were very,</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">very active and I also had elderly parents at the time who also needed</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">my attention. We were just very busy and adding her appts. and</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">therapies just made life more complicated.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;"></span> </div>
<div align="LEFT">
<span style="font-size: small;">After age 3 certainly there were many hard days dealing with the</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">schools. But for the most part we were just a family raising children and</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">fit in where ever we went. Now as we age I again feel that this is a hard</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">time as we face our own mortality with a disabled dependent adult. We</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">just updated our will and that was an emotional process as we needed to</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">really iron out everything with our boys . It also required us to figure out</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">how much money we spend on her/year to ensure we have enough</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">money saved in the event of our death.</span></div>
<div align="LEFT">
</div>
<span style="font-size: small;">
</span><span style="font-size: small;"></span><br />
<span style="font-size: small;">Our daughter is now nearing 30 years of age.It is very hard to find something</span><br />
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">for her to do that is stimulating for her. She does very well but does</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">not seem to have the stamina or emotional maturity to work a “real” job.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">She is really too high functioning to work in a sheltered work shop and</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">can be non-compliant. We have been very fortunate to have her</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">volunteer in her local school district in the younger age classrooms and</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">the library. She also volunteers at the local public library. This keeps her</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">busy for about 20 hours/week. So making sure she has a stimulating</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">place to spend part of her day is always a great deal of work each fall.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">She also participates in dance class and a cooking class but building her</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">schedule from the ground up is always a challenge and one I take very</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">seriously. Only because she can read very well and because her</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">communication skills are so good can she “work” in the library and</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">school environments.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;"></span> </div>
<div align="LEFT">
<span style="font-size: small;">Medically we have never been crisis oriented with her health. She</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">generally sees the doctor every 3 months for a medication review and</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">just to keep tabs on her health. She has GERD, anxiety and multiple</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">sinus infections but these really are minor inconveniences not major</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">health problems. She sees a psychiatrist every 2 months so she has</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">someone impartial to listen to her problems and for medication reviews.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<strong><span style="font-size: large;">How did Down Syndrome change you?</span></strong></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">I believe that having a daughter with Down Syndrome has made me a</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">much more compassionate person. I had NO association with anyone</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">who was mentally disabled as a child and actually only casually knew</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">someone with polio. So this was a whole new world for me. As a nurse I</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">cared for physically disabled patients but never once did I have a</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">developmentally disabled patient. I certainly do not take for granted the</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">health of newborn babies. I am a more open, less critical person. I have</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">met many wonderful people on this journey that I would have never met</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">had I not had my daughter. Many of these people are top notch teachers,</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">physicians and other professionals.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<strong><span style="font-size: large;">Are you or your daughter active in any social activities related to DS?</span></strong></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">Yes and no. I was very active in the Down Syndrome Association when</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">she was young. I actually ran it for 4 years. Now I have a very casual</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">relationship with the organization but rarely attend events. My daughter takes a</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">special needs dance class and all the girls/women happen to have Down</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">Syndrome. She also takes a special needs cooking class but no one else</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">in the class has DS, but they all have some type of developmental</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">disability. We have been members of several organizations over the</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">years related to DS. Now as an adult we tend to join groups that are for</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">those with disabilities but not limited to those with DS. She attends a</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">special needs dance offered every quarter, also. I helped open a home</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">for mildly developmentally disabled clients approximately 12 years ago.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">Although I have not been active in this non-profit housing for about 6</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">years I am still in touch with them. They have several residents with</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">D.S. and many social activities. We could be very involved in this group</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">but basically it is a long drive and we choose to do activities that are</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">closer and those that involve friends and family.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<strong><span style="font-size: large;">Best thing you ever did for your daughter. Advice you would give.</span></strong></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">Probably the best thing I ever did for my daughter was not to make</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">excuses for her, I held her to a high standard of behavior. I felt she had</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">enough strikes against her without being a spoiled brat on top of her</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">other problems. I also have exposed her to all sorts of different social</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">situations where acting up was not acceptable, black tie dinners,</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">Broadway plays, airplanes etc..I have always found that parents of</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">handicapped children seem to be reluctant to discipline them. If she</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">misbehaved she was removed and not allowed to participate until she</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">could behave. I have literally been eating with several teens/parents of</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">girls with DS who cleared that area of a restaurant. I am truly the only</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">person I know who will stop and discipline my daughter. Most of my friends</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">allow their children/adults to interrupt, speak very loudly, and generally</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">get away with murder. I attribute it to the parents being so used to poor</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">manners that they do not recognize it anymore or just due to the parents</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">being so warn out that they let things slide. In the end this only serves to</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">limit the possibilities for their children. I care deeply for all these people</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">but do not understand why they are so reluctant to enforce common</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">sense social boundaries.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<strong><span style="font-size: large;">Biggest mistake you made, if you had a "do over" what would you</span></strong></div>
<strong><span style="font-size: large;">
</span></strong><strong><span style="font-size: large;">change.</span></strong><br />
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">I think the biggest mistake I made was letting her weight and diet</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">get away from me. She was always a good eater but never gained weight</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">easily until she was about 7 years old. During her teen years she packed</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">on the pounds and then after her brothers left the house we started to eat</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">out more. I should have nipped it in the bud when the weight gain first</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">started and really emphasized healthy eating and adequate exercise.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">Also she is very emotionally dependent on me. This developed in the</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">late teen years and I am not sure how I could have intervened to prevent</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">this from happening but it is something for people to watch for in their</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">adolescents. It seems that many teens with DS either develop anxiety</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">issues or OCD tendencies. She has seen a psychiatrist for about 14</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">years and is on mediation for anxiety.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<strong><span style="font-size: large;">Does your daughter know she has down syndrome? If so when</span></strong></div>
<div align="LEFT">
<strong><span style="font-size: large;">and how </span></strong><strong><span style="font-size: large;">did you tell her, if not why not?</span></strong></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">As mentioned before she does know she has DS and has for many</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">years. I do not believe we ever had a sit-down discussion about it.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">Certainly it was probably mentioned at every doctors appt. So it sure</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">would have been hard to conceal it. The fact that she had DS was</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">nothing that we ever hid, it is just part of who she was and is. She knew</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">or sensed that she looked different and learned slower than her peers by</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">about 2 nd grade and would often ask questions about it. I always</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">answered honestly and briefly. The higher functioning people with DS</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">are usually aware of their disability and understand its life implications.</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">The people with DS that are severely mentally handicapped or at the</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">low end of the moderately mentally handicapped most likely are not</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">aware that they have DS. Or if they know they have DS they are not</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">truly aware of their own limitations. Actually of all of her friends</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">with DS only one other person really understands they have DS. This</span></div>
<span style="font-size: small;">
</span><br />
<div align="LEFT">
<span style="font-size: small;">“understanding” is what I believe can often lead to anxiety and</span></div>
<span style="font-size: small;">
</span><span style="font-size: small;"></span><br />
<span style="font-size: small;">depression.</span></span></span>David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com2tag:blogger.com,1999:blog-8804044294518893734.post-21844302293942860032012-10-01T06:50:00.001-07:002012-10-01T06:50:31.876-07:002.5 Years Old <div class="separator" style="clear: both; text-align: center;">
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Long time without an update on my little man. He is doing awesome. Since his birthday in April he has only had a few colds. The worst was when we did mommy/me swim lessons which I loved. He got sick a lot and I am wondering if he was aspirating the water because he drank a lot during lessons. He did awesome and it was fun, but we stopped in September and will try again next Spring.</div>
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And since I posted in June about his beginning to walk he pretty much walked non-stop ever since that first video. He is trying to master opening doors and thankfully he cannot. Unlike Zac who would never leave our side, David will just take off. He is starting a fast walk and it is not the most elegant gait, but it gets him everywhere. We are working on walking on different surfaces, kicking, and jumping which are still difficult for him. He rarely butt scoots anymore and will almost crawl under my legs like a tunnel, but still really hates crawling.</div>
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He is still a climber and falls off of the arms of chairs periodically. He climbs up the step stool. He climbs into the stroller. He has no fear of heights, unlike my dear Zac who at 6 is still afraid of heights.</div>
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The two pictures above he is signing"color" "writing" which means "crayons". He now has over 100 signs. We began signing last Christmas. He is really good. Sometimes you don't know he knows a word until he is listening to your conversation and signs a word you just said. You might also notice he is left handed, he signs with his dominant hand. So both of my kids and my husband are left handed. I am right handed which makes teaching things a little difficult.</div>
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Just recently his speaking has begun to take off. He will mimic everything. He also will sign and speak the word at the same time. We had a brief period where he would only speak words he didn't know the sign for. I was considering stopping the sign language, but within two weeks he started saying the words he signs. He will parrot most things you ask him to say. I can understand most of his words, others may not be so fortunate. We are going to try Kaufman cards for speech therapy. It is a method for kids who have apraxia (word approximations) the therapist thinks it might help him speak more clearly.</div>
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Books, books, books...his favorite activity by far. Give him a toy and he will use it as a bat or throw it across the room. Give him a book and he will go through each page or sign for you to read it to him. He points to all the pictures and signs the pictures he knows. We read every day. I do flash cards with him once a week. He watches a signing video every morning while I get ready for work. I foresee an IPAD in our Christmas/Chanukah future most likely this winter. I am not an apple fan, but when it comes to apps for special needs apple wins hands down (frown).</div>
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He loves balls. Especially football. Zac was exactly the same. They love to play catch. And I might encourage it a little as it is one of the few toys your are supposed to throw.</div>
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David attends a typical daycare, he is in the 2 year class room. He loves it and the teachers and parents and kids love him. He went through a biting phase for a week. He was getting another tooth and it was really bothering him. Tooth count is 4 molars, 3 top front teeth, and 2 bottom front/side teeth. His teeth look weird, but he won't let me get a picture.</div>
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Eating is not happening. 100 percent tube fed, and lately doesn't even want to try food for me. We are increasing tube feeding to gain some weights (he needs to gain 4 pounds he is only 23 pounds). We need to then evaluate what is going on with his swallow. More testing may be in our future and possibly a therapy called vital stim. Until his weight is where it should be no aggressive weaning is happening. I keep hoping he will just start eating like the walking and the talking (maybe I am crazy).</div>
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Heart is perfect at the last appointment. No visit for 1 year. No holes and the pressure is in the normal range. </div>
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My sweet 1st grader, Zac. He can't even get his own picture with his favorite dog shadow without David sneaking in. David loves his big brother. Unfortunately, he like to throw Zac's toys and hit Zac with a bat. Zac has endless patience and loves David to pieces. He loves to read him books and wrestle with him on the couch. He is an endless worrier and David's climbing gives him a heart attack. The acceptance of a sibling is a good lesson for grown ups. David is the only brother he has and he doesn't hang out with other 2 year olds so this is all he knows. Zac thinks David is awesome and he is quite proud of him. I am raising some good people for this world we live in.....</div>
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I love me some Zachary, as he likes to be called. He is in 1st grade and he is doing awesome. He is on track to great things. He loves school, everything about it. And he has just started his first sport, flag football. He is not very athletic, but he is having a blast. I think he is absolutely adorable, he is in that awkward stage of losing teeth every month. He is 90 percent good kid and 10 percent annoying kid. I am truly blessed.</div>
<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com2tag:blogger.com,1999:blog-8804044294518893734.post-47609337973666508862012-08-22T07:05:00.000-07:002012-08-22T07:05:24.232-07:00David vs. The Hat<div class="separator" style="clear: both; text-align: center;">
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<br />David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com0tag:blogger.com,1999:blog-8804044294518893734.post-64897754670575078912012-08-08T06:11:00.000-07:002012-08-08T06:12:01.258-07:00Heart Surgery Anniversary<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
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<tr><td class="tr-caption" style="text-align: center;">1 year post surgery</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwPII2s2m63-EmKjrW1zinkoIaR7Ax_10t00Hv5xGCqw9fMexM-rDIlEcJjcKXpg0s3JNJrRlaVBga5B-CmZ4wZjCn_zV9vod8hvH5buVck2fco92Nodm1wpeIOAgDINKvlQ4CwSy-NCs/s1600/012.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjwPII2s2m63-EmKjrW1zinkoIaR7Ax_10t00Hv5xGCqw9fMexM-rDIlEcJjcKXpg0s3JNJrRlaVBga5B-CmZ4wZjCn_zV9vod8hvH5buVck2fco92Nodm1wpeIOAgDINKvlQ4CwSy-NCs/s320/012.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">1 year post surgery</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjamURjtoj4HOYaImc_7x7ETRHa_kOddMd3RBhXY81KLghfn3hZYJFVxWy2hLR_w3_1g5Ahl6TAWKd2f3avjNmLHUXV8m9L2yf-pjX8ESKPdA2jLbNwjPl3wyE913FfqG456HqC73Jivu4/s1600/025.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjamURjtoj4HOYaImc_7x7ETRHa_kOddMd3RBhXY81KLghfn3hZYJFVxWy2hLR_w3_1g5Ahl6TAWKd2f3avjNmLHUXV8m9L2yf-pjX8ESKPdA2jLbNwjPl3wyE913FfqG456HqC73Jivu4/s320/025.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">1 year post surgery</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinsQ4B2WSveqaaD3hYF7Pv05YS2bF7OVkXUCz4D-CSExkXOUZUyaQ6I3nyT9Xo9uSD8iNFMvzXulICfYq45HD4D2zyIjM0LfPS31FHJZcZHJF3-l32H_5PcXpnGdrb082oHZ_rCsP1OuI/s1600/005.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinsQ4B2WSveqaaD3hYF7Pv05YS2bF7OVkXUCz4D-CSExkXOUZUyaQ6I3nyT9Xo9uSD8iNFMvzXulICfYq45HD4D2zyIjM0LfPS31FHJZcZHJF3-l32H_5PcXpnGdrb082oHZ_rCsP1OuI/s320/005.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Day of surgery</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4uu_RIhVIGQBlRgepc_gwFUjM84NlQtiCD0ZWlQMEt1fzor6OyLzYkzPibSDar5IxG0L_Hqam_zMbHeu2ewtREarji7GXhcVyXh3C193kC6SvxcadzkoFCHGKHxjACoJZb6a9_OHQv_o/s1600/035.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4uu_RIhVIGQBlRgepc_gwFUjM84NlQtiCD0ZWlQMEt1fzor6OyLzYkzPibSDar5IxG0L_Hqam_zMbHeu2ewtREarji7GXhcVyXh3C193kC6SvxcadzkoFCHGKHxjACoJZb6a9_OHQv_o/s320/035.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">4 days post surgery</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhd_60HsZ6Yx-r-PdqrWnZBmJc3BImV4b8ZkZbtBgQjjyYXUPVk_DaXBCVNliNtrX1WZumA7RyHL4BU3OoCItw41GKNZ6-KUdXacDeFhOYxPP3Fr0dO3CkGu6RcHZ3_3T8s5BUusKS_HFI/s1600/084.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhd_60HsZ6Yx-r-PdqrWnZBmJc3BImV4b8ZkZbtBgQjjyYXUPVk_DaXBCVNliNtrX1WZumA7RyHL4BU3OoCItw41GKNZ6-KUdXacDeFhOYxPP3Fr0dO3CkGu6RcHZ3_3T8s5BUusKS_HFI/s320/084.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">2 weeks post surgery</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoE2Eot73VnkxWZnkmsdobEdKU0ye99eASNYeLOOYDrYGqXrckJ-mu0-LipnyRgP4cmerf4lsPSMDtimuuRE9Vx-QuQCM4_np0dV0i2-LXfcbIp_AbCPO3UePk0P3dqueDd8xoT6TQ7Yo/s1600/010.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoE2Eot73VnkxWZnkmsdobEdKU0ye99eASNYeLOOYDrYGqXrckJ-mu0-LipnyRgP4cmerf4lsPSMDtimuuRE9Vx-QuQCM4_np0dV0i2-LXfcbIp_AbCPO3UePk0P3dqueDd8xoT6TQ7Yo/s320/010.JPG" width="209" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">6 months post surgery</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaYALk6i2tQz7UiY0k-HLWlTww_qnNqVlzUWk1_8SGLzS_S0dB-6VHI2lXpMo8zfxqQyYBs5XluMBxo5R5CWnx-IeDJdh6vg2DeZNFzgX9Cr_POcPPltoKPEPKuCLlf6aENskRS62B3PY/s1600/007.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaYALk6i2tQz7UiY0k-HLWlTww_qnNqVlzUWk1_8SGLzS_S0dB-6VHI2lXpMo8zfxqQyYBs5XluMBxo5R5CWnx-IeDJdh6vg2DeZNFzgX9Cr_POcPPltoKPEPKuCLlf6aENskRS62B3PY/s320/007.JPG" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Happy to have my boys</td></tr>
</tbody></table>David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1tag:blogger.com,1999:blog-8804044294518893734.post-20404678204788838242012-07-09T06:43:00.002-07:002012-07-09T06:43:18.932-07:00Picture Update - My Favorite Kind of Post<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_Z6V2Yrv10BVH98f6zjjfyUKgm9ZiM5WncptkbgIPJ26PkAoMYP-exabUpuZFD92PF5zDn0TeeGqMl0kfAl2i73flx2IFGSPWo7ztYoUutUiAxnU2MwKZPROCvPvdrfha-zvxMNOM8nQ/s1600/019.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj_Z6V2Yrv10BVH98f6zjjfyUKgm9ZiM5WncptkbgIPJ26PkAoMYP-exabUpuZFD92PF5zDn0TeeGqMl0kfAl2i73flx2IFGSPWo7ztYoUutUiAxnU2MwKZPROCvPvdrfha-zvxMNOM8nQ/s320/019.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hi Mom</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4dE8lDcgeNv7UKtUGk1IwHsR7C70lhJog6ZiEfSnLCmDQxu6BuabhKs2KMVzNZqVUrMA8YUXb4dKn08hEYWoBAH3vsDmnaC-Q1zfQPfWjjT0-stQX-TlqqS24UB7Zm_oGCc_JY-VO2Fo/s1600/020.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj4dE8lDcgeNv7UKtUGk1IwHsR7C70lhJog6ZiEfSnLCmDQxu6BuabhKs2KMVzNZqVUrMA8YUXb4dKn08hEYWoBAH3vsDmnaC-Q1zfQPfWjjT0-stQX-TlqqS24UB7Zm_oGCc_JY-VO2Fo/s320/020.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Hip Hip Hurray</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjs95Ygdx1cODLhsecE-s8Jj5Gtq2qJ46ebx3kUQEtsqN8AFcpoXbIGqam_P3q3UUr0d3p916TCdjwqumN7mCnSOWoBJZoxHjLwZjtxCia5LGNFf0f16Wl_wemu5g5omvdZo1s2gBVqzlY/s1600/001.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjs95Ygdx1cODLhsecE-s8Jj5Gtq2qJ46ebx3kUQEtsqN8AFcpoXbIGqam_P3q3UUr0d3p916TCdjwqumN7mCnSOWoBJZoxHjLwZjtxCia5LGNFf0f16Wl_wemu5g5omvdZo1s2gBVqzlY/s320/001.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">I Love to torment a sleeping dog....poor Hunter</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigcFML298VMAif3OpRkm489hMACXe1RLOAWHsdtU-CjDc2zQzzGEBXJa9cLSXzDnK8lhHIITED2VfYWvwiH9ZWLIfVhVtTV0kyGhwRACTFK6e8uEfeX265B794C7r37QfXh3qNmmM1g1o/s1600/003.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEigcFML298VMAif3OpRkm489hMACXe1RLOAWHsdtU-CjDc2zQzzGEBXJa9cLSXzDnK8lhHIITED2VfYWvwiH9ZWLIfVhVtTV0kyGhwRACTFK6e8uEfeX265B794C7r37QfXh3qNmmM1g1o/s320/003.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">First time playing weapons with the Big Guys</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjI6nljTZNyRBY_fdd8qOeu6-hNAZno8R9093TrezExKdTIMLXGA1LOVOjZIe_O7voZJgIitmHRs5K9FalnM6THSy7Cwf-wqsXYuPIYfmzHoBJ6tJJQhg8VHYPUoHk77Cm9ocp2e-AyZfY/s1600/005.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjI6nljTZNyRBY_fdd8qOeu6-hNAZno8R9093TrezExKdTIMLXGA1LOVOjZIe_O7voZJgIitmHRs5K9FalnM6THSy7Cwf-wqsXYuPIYfmzHoBJ6tJJQhg8VHYPUoHk77Cm9ocp2e-AyZfY/s320/005.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">He decided his head needed protection.</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjo9s-5A1Pgpa7HGHP0enMI5AkRu6ns9e5WETpI_8XiLd0n5WK4Py-Z16Bi9muN2o9rYUSX7z01AxHr65wFHFbmcex8nN6WCiBnOPAr3nvj2ti9zRK_d6qhL24PjVajrfZJxKd892G_hb4/s1600/025.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjo9s-5A1Pgpa7HGHP0enMI5AkRu6ns9e5WETpI_8XiLd0n5WK4Py-Z16Bi9muN2o9rYUSX7z01AxHr65wFHFbmcex8nN6WCiBnOPAr3nvj2ti9zRK_d6qhL24PjVajrfZJxKd892G_hb4/s320/025.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Loves to put things away.....or hide things</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBIgBHQNf0D3jPrkaxQ8548Jc9-qlH7qd9Zpw4sFenFkg2jxhOJilVbo7vRFQjD59FTTYRqVp-GXkgY7vpWIFkzcUBdYDtIwFKddoyBwrwp8abodf4aDP0T86FE1q9RbBPSv2kkRphme8/s1600/024.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBIgBHQNf0D3jPrkaxQ8548Jc9-qlH7qd9Zpw4sFenFkg2jxhOJilVbo7vRFQjD59FTTYRqVp-GXkgY7vpWIFkzcUBdYDtIwFKddoyBwrwp8abodf4aDP0T86FE1q9RbBPSv2kkRphme8/s320/024.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Arghhhh....going to go destroy some towers.</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDPLr9C42e1k9_YoFui9TUOorw3Zy-lztkX3oCuIZ7CNYkIZnrJLTP6eOn34wKmO2i20R10SlDxrFKhKtsAU_ovjvqKpS6JbwujvdS1-bJQ25bYHkuHmSxcm7IGc_Xg8VMehRFBRiQmxw/s1600/027.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDPLr9C42e1k9_YoFui9TUOorw3Zy-lztkX3oCuIZ7CNYkIZnrJLTP6eOn34wKmO2i20R10SlDxrFKhKtsAU_ovjvqKpS6JbwujvdS1-bJQ25bYHkuHmSxcm7IGc_Xg8VMehRFBRiQmxw/s320/027.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">New thing is standing on the couch.....give mommy a heart attack.</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmuDicd3S2YwHy3-rudxLP3s1NKub7_8mPl2sNOtxkBAIsk5pjsnSLFyIXMcQCx0LiyGNQRvvcVZEcMKSTa1M7b5HdO_X00BgnnfV6-eOSwfMd6dkkbWB42EXAWbgqScMAzo1fQz2qzMU/s1600/008.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmuDicd3S2YwHy3-rudxLP3s1NKub7_8mPl2sNOtxkBAIsk5pjsnSLFyIXMcQCx0LiyGNQRvvcVZEcMKSTa1M7b5HdO_X00BgnnfV6-eOSwfMd6dkkbWB42EXAWbgqScMAzo1fQz2qzMU/s320/008.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Painting with food...they call this therapy.</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivbUO6RTWeCJXbcn5X8BP2FSqHn1tssHfJIeIyM6V9dsb-h4yHK8oxCSJ8huE5lL7wwwBhn03OeJkhz98nHrkrgDJB5z1lTizUq8gqlqiEL3MITya8fa4ef28jn5JgBz_Ajj3iCGhULtQ/s1600/013.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivbUO6RTWeCJXbcn5X8BP2FSqHn1tssHfJIeIyM6V9dsb-h4yHK8oxCSJ8huE5lL7wwwBhn03OeJkhz98nHrkrgDJB5z1lTizUq8gqlqiEL3MITya8fa4ef28jn5JgBz_Ajj3iCGhULtQ/s320/013.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Mom taught me to clean my hands on my socks.</td></tr>
</tbody></table>
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<table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1o8o9L1fvNbcYltO2hyDaFkCzpGpkhv486F2Qm73Zh3NA1cz00iRvb6Neo2mDiY3KKcYZyLBtF1CrYnxUIk03ZmjUjB1dXEXmxr-RHCE1Eczbb1T752kC-OcPULx4SeYZxC9gLJtj5xI/s1600/014.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1o8o9L1fvNbcYltO2hyDaFkCzpGpkhv486F2Qm73Zh3NA1cz00iRvb6Neo2mDiY3KKcYZyLBtF1CrYnxUIk03ZmjUjB1dXEXmxr-RHCE1Eczbb1T752kC-OcPULx4SeYZxC9gLJtj5xI/s320/014.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Checking out this Oreo.......</td></tr>
</tbody></table>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjVjtY5cyUr9WsZWUhNeQSjLb8kqKLwwVOXm8sLBCBCrpXAJ1iSfTzGLLbGVE9jGhCCCGtt5xMEm8mtCFM8vwXbJGrfzFbT240cJ1fe9EhBYI3TE5DMwN1l0NJJZpRXFSm2TvNc9RiHMY/s1600/015.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgjVjtY5cyUr9WsZWUhNeQSjLb8kqKLwwVOXm8sLBCBCrpXAJ1iSfTzGLLbGVE9jGhCCCGtt5xMEm8mtCFM8vwXbJGrfzFbT240cJ1fe9EhBYI3TE5DMwN1l0NJJZpRXFSm2TvNc9RiHMY/s320/015.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">It's going in.....</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUf7WgwQtQyHue5yPIOA7BQHQWJI1WDakuPfMfK7jYob44xErtpAvpRxNk7R62xb0qPjc8EQ_0h-ebf83WyPCYCjwDpKh1sItptvc4D9RC87v4sN1wfHBC2tCaHU17M63kS_bgzxJbb80/s1600/017.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjUf7WgwQtQyHue5yPIOA7BQHQWJI1WDakuPfMfK7jYob44xErtpAvpRxNk7R62xb0qPjc8EQ_0h-ebf83WyPCYCjwDpKh1sItptvc4D9RC87v4sN1wfHBC2tCaHU17M63kS_bgzxJbb80/s320/017.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">If only I wasn't afraid to swallow.....the taste is great.</td></tr>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtAQgcNcafKuodHttVo0vUYuKlAEoqGjedYfPFfuZCKCf8JqXmWCJ3xy4IRt3EFkQQcA_TJW5Fw471HemCIAwc-jqHwr6Q1rEh3MYIQS3o74yR-5KFFtks-d_NeOEeEGImD9VeqGuOPsE/s1600/028.JPG" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtAQgcNcafKuodHttVo0vUYuKlAEoqGjedYfPFfuZCKCf8JqXmWCJ3xy4IRt3EFkQQcA_TJW5Fw471HemCIAwc-jqHwr6Q1rEh3MYIQS3o74yR-5KFFtks-d_NeOEeEGImD9VeqGuOPsE/s320/028.JPG" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">And I was awarded a pillow for sleeping....thank you Croup.</td></tr>
</tbody></table>David's momhttp://www.blogger.com/profile/11237406773820172953noreply@blogger.com1