This blog is mostly about my son David that has down syndrome and eats through a feeding tube.
Friday, March 25, 2011
Activating Team David
Since David was born there has been discussion about Team David. There are so many great people that love and support David and our family from the NICU to hospital stays to everyday life. We want a place to share information about David's journey and recent pics. And if all goes well a place to discuss his journey to and through open heart surgery.
That's right, we are praying for heart surgery in May or June. I know it sounds strange but we have always felt his heart needs to be fixed sooner rather than later. There has been much discussion with the cardiology team since David's birth. First it was wait until he gains wait, did it. Then it was wait until he is off of oxygen support, did it. Then it was let's do a heart cath to check his pressures, did it. Then it was let's do a CT scan to check his lungs, did it. Then it was try him on Viagra (yes, Viagra) to get the lung pressures down, have been doing it for 6 months now. Next is another heart cath. The Pulmonologist is on board with us, they vote surgery by June 15th. Let's hope it all falls into place.
So in anticipation of heart surgery, I have ordered the rubber bracelets and started this blog. Maybe if we just go in the direction that it is happening we will make it happen. For those that know me, I have powers, and I try to use them for good (long story).
A picture says a thousand words and as you can see illness never washes the smile from his face. No mater how sick he is he loves to play and interact with people. This was when he was in the hospital.